“Illustrating” the Role of the Expressive Arts Among Children and Youth with Cystic Fibrosis: A Narrative Review « Illustration » du rôle des arts de la scène chez les enfants et les jeunes atteints de fibrose kystique : une revue narrative

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Stephanie Posa
Fiona Moola


Abstract: In this paper, the authors conduct a narrative review of the literature to explore the role of the expressive arts in the lives of children and youth with cystic fibrosis (CF). While most research designs in this review were case studies, researchers used a variety of art forms in their studies, including poetry, photography and drawing. Our findings reveal that researchers used the expressive arts to understand and address the psychosocial states, social health, physical health, and coping patterns of children with CF. The expressive arts might be a powerful tool to explore the facets of health in this population.

Key Words: Cystic Fibrosis; Expressive Arts; Narrative Review; Child; Youth.

Résumé : Les autrices proposent dans cet article une revue narrative de la littérature afin d’étudier le rôle des arts de la scène dans la vie d’enfants et de jeunes atteints de fibrose kystique. Si la plupart des études liées à cette revue relèvent d’études de cas, les chercheurs ont utilisé pour leurs études plusieurs formes d’art, notamment la poésie, la photographie et le dessin. Nos résultats démontrent que les chercheurs ont fait appel aux arts de la scène pour comprendre et aborder les conditions psychosociales, la santé sociale, la santé physique et les modes d’adaptation des enfants atteints de fibrose kystique. Les arts de la scène pourraient bien être un excellent outil pour étudier les diverses facettes de la santé au sein de cette population.

Mots-clés : fibrose kystique, arts de la scène, revue narrative, enfant, jeune.

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